Showing posts with label brain degeneration. Show all posts
Showing posts with label brain degeneration. Show all posts

Wednesday, November 6, 2013

A Resting Place In The Garden of Eden

“Be sure you blow out the candle before you go to bed.” It was my husband’s voice reaching out to me. This was a familiar warning, because when Tommy was alive, he repeated that order every Friday night after I lit the Shabbat candles.

“It has to stay on for 24-hours,” I said, not aloud, just in my head as I have done for many of our afterlife conversations. “It’s a memorial candle, it marks your November 2 anniversary.”

“Your people are weird,” Tommy said. “Why celebrate my death? Why not my birthday? Our marriage?”

“It’s not a celebration,” I said. “More an occasion to remember our loved ones. Did you hear me recite the memorial prayer; His resting place shall be in the Garden of Eden? I like that. It helps me cope.”

I went on, “I imagine you in my version of the Garden of Eden, playing golf with Bill and some other departed duffers. Your voice is fully repaired, so you’re teasing each other with each shot. Am I close?”

“Pretty good,” Tommy said. “Add in that we never have to reserve a tee time. We can walk on any course, any time of day or night.”

I loved that image, so I took our conversation a step further. “Can you believe, sweetheart, it’s been an entire year? Blink of an eye,” I said.

“Well, you’ve been a busy girl during that year.”

In my mind, his voice was proud not angry. I recognized that cherished tone because it was one that bound me so closely to this second mate. I could see him at the 2006 book launch for my memoir; first row, first seat, beaming at me as I stood on the stage of Women and Children First.

Tommy was my first reader for the book. I’d hand him 10 pages, which he grabbed as eagerly as if I was writing one of the Elmore Leonard or Ruth Rendell novels he loved.

“Great,” he’d say. Or sometimes, “I don’t like the chapter title,” or “I don’t understand this Yiddish word.” Those reviews were my cue to alter or translate.

“Yes, it has been quite a year,” I said, winding back to his assessment. “You supported all of my activities, right, honey?”

There was a hush from my illusive conversation partner. He’s likely reminiscing about our house, I thought, the one we lived happily in with our Golden Retriever, Buddy. The house I sold.

A few beats later, his response: “It was hard to watch you leave Dakin Street,” he said, confirming my suspicion. “But I understood you had no choice. Without me to do the maintenance stuff and without Buddy to protect you, it was too large and too risky to stay alone. Still, I felt a pang.”

I quickly changed the subject that was raw for both of us. “So, Tommy,” I said. “How are you keep tabs on me? Watching on high from a cloud?”

“I read your blogs,” he said.

I hit pause on our chat as I quickly reviewed a year’s worth of posts. Were they all favorable? Had I exposed anything he would prefer hidden? When I started the first blog, “The Rookie Caregiver,” I called him to my computer and asked if he’d like to read what I had written.

“Pull up a chair,” I said, nervous about his reaction. My husband was more private than I, even elusive about his past, so I worried how he would feel about this Internet publicity.

But he avoided a seat and instead stood behind me as I scrolled through the pages. He patted my shoulder, and raised two thumbs, his universal sign back then of “Okay by me.”

“You’re fine with all of this past year’s posts?” I said to my dearly departed. I wanted to be sure I understood him correctly. I knew there could be several filters between heaven and earth that might mess with communication.

“Sure,” he said, “I’m quite the superstar up here,”. “Everyone is jealous they’re not kept alive – well, sort of – like me.”

“Your privacy,” I said, “you don’t have a problem with me sharing our stories with the world?”

“Sweetheart, don’t get a big head. It’s your world, your friends, and your fans. You’ve never kept secrets from them.”

I was relieved to hear this, to get Tommy’s blessing. “Okay, honey,” I said. “You can rest easy. I promise to blow out the candle before I go to bed.”

“Good girl,” he said, then, “love you, Wifey.”

“Love you, too, Hubber, I said; misting at the memory of our pet names for each other.



Thursday, October 3, 2013

Déjà vu

I watch as the nurse places two plastic bags in the locker. One holds my friend’s shoes; the other clothing he has removed following the nurse’s instructions.

“Will my stuff be safe?” he says to me.

“If you like, I’ll put your wallet and watch in my tote,” I say.

What I don’t tell my longtime friend, who I’ve accompanied to this Outpatient Ambulatory Surgical Center, is that I’ve got this down pat. In Tommy’s case, I stowed his aged wallet and wristwatch in my bag where it never left until I placed them on a mini-memorial atop his chest of drawers in our bedroom.

“I left my wallet home,” my friend says.

“So, no worry,” I say. I sit on a chair facing his bed while we wait for another nurse to come in to get his vitals. Next, the anesthesiologist reviews drugs they will use to knock him out, and finally the surgeon appears to discuss what happens next.

While this is going on, I zone out and recall the time a year ago when I sat with Tommy in a pre-op area. In his case, the ENT team planned to insert a feeding tube down his throat so he could get nourishment. He was dehydrated – that’s what brought us initially to the hospital – and the tube was to solve his problem. Then, we’d be on our way home.

After they wheeled Tommy out of the pre-op area to perform the procedure, I returned to his hospital room. The phone rang. “We have a problem,” said the doctor on the other end. “When we tried to insert the tube, there was a blockage. We’re pretty sure it’s cancer.”

The voice of my friend’s surgeon wakes me: “He’ll be out of surgery in a half hour, so just stay put in the waiting area.”

Sure enough, before I know it, the surgeon finds me to say, “He did great. You can go in and see him.” My friend looks fine, and is chatty. Perhaps the painkillers, or his relief all is over is making him eager to converse.

But, as we talk, this latest nurse is monitoring his blood pressure and it is too high. Could our gabbing be the culprit?

“Do you mind?” my friend asks with an eye to the closed curtain that will lead me out.

“No problem,” I say. Then once more I go to thoughts of Tommy and the time he was in this hospital and wouldn’t let me out of his sight. During the 10 days he was here, I’d sleep on a cushioned window seat. On the few nights I didn’t stay over, I’d return to find him wearing a weighted vest.

“He tried to leave,” a nurse explained. “Had his clothing, shoes, and baseball cap on. Was halfway down the hall before we caught him.” Often I’d wish he had escaped, for those hospital days were the worst of my life -- heartbreaking and fruitless.

Once my friend’s blood pressure subsides, I’m allowed to return to his room. He is dressed and ready to be escorted via a wheelchair to curbside where a cab will return us to his nearby apartment.

At his high rise, I push open the lobby doors to save him from exertion. We go upstairs and I hang out for a few hours until I’m satisfied he can be on his own. “I can call neighbors if I have problems,” he says. “Go home.”

When my Tommy was finally released from the hospital – with his internists’ advice to forgo risky surgery because it would be torturous and not cure his aphasia or his increasing dementia -- it was an ambulance that took us home.

When we arrived, neighbors were waiting. I stood on the porch as the drivers lifted his stretcher up the stairs. The neighbors followed and held the front door open. With a gentleness and reverence that reminded me of a potentate’s litter, our caravan moved to our bedroom where a hospital bed awaited.

With Tommy safely settled, in the house where we lived for 13 years, away from the hospital setting I had grown to despise, the neighbors stayed to help set up the equipment. Oxygen tanks and medical supplies stuffed the hospice room.

An evening phone call to my post-surgery friend confirms he is managing okay. The painkillers are doing their job and he is comfortable watching television. “Thanks for being there for me,” he says.

Because Tommy wasn’t able to speak for the last year of his life, I didn’t get those same words. But, as many a caregiver will tell you, it was an honor to be there for him.





Tuesday, June 25, 2013

Flights of Fancy

I knew it had to be Tommy playing tricks. It happened as I was preparing for a visit to Los Angeles -- the first travel from my new rental apartment. On the day before my trip, I opened my wallet to take out my drivers license. My plan was to clip the license to my boarding pass, which, in my obsessively-organized mind, would ease my passage through security.

Gadzooks, the license was gone!  With my heart racing, I dropped to the couch and retraced my steps. Where was the last place I had used the license? Was there an establishment that required this extra identification in order to make a credit card purchase?

Then I remembered: one day, feeling nostalgic about all of the changes in my life, and pining for my deceased husband, I had switched the driver’s license, which was under the clear plastic slot,  to another spot in my wallet. Now, instead of my government-issued face greeting me, it was a color photo of our wedding portrait.

But the driver’s license edge wasn’t peeking out from any other slot like those of my credit cards. Where had I put it? Then, I jabbed my fingers behind the photo and voila. I was certain I had put it in its own niche where it could be easily noticed and extracted, but somehow, someone -- and I am now pointing fingers -- had hidden it tightly behind the 2-x-3.

In my flight of fancy, prior to the actual airplane I was to board the next day, I decided Tommy was having a bit of fun with me. When he was alive, he often scoffed at my habit of hyper-preparation. As example, two weeks before any takeoff, I’d lay everything out in stacks next to my open suitcase. This way, I could add or delete as departure day neared. 

When he’d walk past the room and spot the gaping luggage, he’d say, “We’re not going for two weeks. What’s the rush?”

“This makes it easier,” I’d say, which made sense to me, but to my casual husband, who refused to pack until the night before, or morning of, my regime deserved ridicule. 

After further daydreaming, though, I decided Tommy was also trying to remind me of the trips we had taken together. He wanted to be certain I wouldn’t allow those memories to fade.

With my departed husband prodding my subconscious, I paused preparations to conjure up those long ago vacations. As if I were assembling a jigsaw puzzle, I positioned images, expressions, and other mementos side-by-side until I could see a fuller picture.

First it was words that came to mind, likely because I was grateful for the years Tommy still had speech. “Mind the gap,” I could hear him saying. We were standing on a London platform awaiting public transit. On that trip, we visited Buckingham Palace, Harrods, and other typical tourist spots. And in my revery, I also remembered,  “punting on the Cam,” held over from a visit with friends in Cambridge that he enjoyed repeating for weeks after we returned home.

We toured Italy -- the Spanish Steps in Rome, the destroyed city of Pompeii, the hillside villages of the Amalfi Coast -- and dined in restaurants the guides promised were frequented by locals. I was able to capture bits and pieces, but so much of those travel memories had been slipping away with each passing year.

“Yes, those were wonderful,” I told Tommy aloud. “I’m so happy we were able to take them together. I noted that my husband, in this celestial cameo, hadn’t brought up our last mutual trip to Boston. I assumed he didn’t want to remind me of the difficulties after he had lost speech and his brain suggested to him a false bravado.

“You can’t go alone,” I remember pleading when he insisted on taking a walk from our bed-and-breakfast to nearby Jamaica Pond. I couldn’t join him for one reason or another, but he just smiled at my warning and pushed past me.

I started to cry. “Please, honey,” I said. “I’ll worry about you crossing that busy street and being late for our date. Please stay here with me.” And gratefully, he did.

Had Tommy held onto some resentment from that episode? Would that explain his current trick? No, I prefer to think my first notion was on target: my dear husband was just sending me a message, “Have a safe trip,” he was saying, “and don’t forget me.” As if...


Thursday, June 13, 2013

Green Nails and Other Acts of Rebellion

“I know you hate them,” I say to Tommy during one of our frequent celestial conversations. "But when you died, you forfeited your vote on my nails.”

If my husband were still alive, I would never have handed over a bottle of Estée Lauder’s Absinthe to the manicurist. He had made it clear that he found shades other than natural, beige, or a subtle pink garish.

It was easy to go along with his preferences when his wishes were earthbound because my spouse of 14 years was a dear. “He makes me feel as if I walk on water,” I’ve often told people who were curious about the differences in our religion, bank accounts, family relationships, and levels of education. And let me tell you, that’s a sentiment not easy to come by.

There were other habits that Tommy brought with into this second marriage that I tolerated, even when towards the end of his life, were magnified by an illness that included brain degeneration.

At first I tried, “Honey,” I’d say putting a hand on his arm. “Sit, you can clear up the counter after we finish eating.” But, he’d touch my cheek -- a gesture I took as “you’re cute, but not going to happen.”

So, while I started in on the meal I prepared (that was our division of labor, I was the cook, he was the bottle washer), watching a rerun of “The Andy Griffith Show,” Tommy would rise, leaving his food to turn cold, as he put various utensils in the dishwasher, replaced the menu’s ingredients in the refrigerator or cupboard, and wiped down the countertops. By the time he returned to his chair, I was usually on my last mouthful.

Now, you guessed it, in my new life sans spouse, everything -- dishes, ingredients, serving spoons, and more -- remain out until I feel like cleaning up. I imagine Tommy and these waiting kitchen objects engaged in conversation: “Can you believe it,” the tossed dishtowel says to my husband. “The woman you thought walked on water has become a slob.”

“How long do you think she’s going to leave us sit here?” I could swear the frying pan adds. “Doesn’t she realize the grease is going to harden and make my clean up that much tougher?”

While those bossy things are jabbering about me, my resurrected husband is smiling. If I place him in the conjured scene while he still had voice, he’d say, “I had a feeling that would happen. She’s a sweetheart, but without me around, I can see how she’d get sloppy.”

Now, if it was later in his life, when his aphasia erased speech, Tommy would just shake his head and turn the thumbs of each hand down. A sign of displeasure that is now bouncing off my sloven shoulders.

I ignore my pretend cast of characters who are casting dispersion and finish my meal. With my viewing partner gone, I have switched television programs. Sheriff Andy has given way to Mr. White, of the current hit, “Breaking Bad.” Also, instead of kitchen-table viewing, in my new apartment, I’ve transitioned to couch with dinner tray on lap.  

I’m not certain if this counts as a genuine act of rebellion because Tommy and I weren’t watchers of the drama back then. But, the violence and drug themes might have put him off. Remember, this is a man who prefers nails in neutral shades rather than tropical colors.

This part though, is definitely treasonous. I stack the dinner dishes in the sink, intending to place them in the dishwasher maybe this night, maybe tomorrow morning, maybe even tomorrow evening.

With an evil smile, likely inspired by the TV show, I turn to the figments of my imagination and say, “I don’t care what you think. The dishes can wait.”

Everybody but Tommy receives this declaration aghast. “Has she fallen this low?” I believe the empty wine glass says to the salad plate. Then, the crabbing crew turn to my husband expecting equal derision and disbelief.

But, he is laughing. A subtle, sweet laugh as if he is in on the joke. “Relax,” he says. “Give her time. She’s like a kid let out of school, testing her independence. Just watch, in a few weeks, her kitchen will look more like ours did when I was in charge.”

Tommy may be right, for unwittingly, I just returned the salad dressing to the fridge pre-tuck in. Oh well, the rebellion was fun while it lasted, but, the green nails definitely stay!

Thursday, June 6, 2013

The Men In My Life

I’ve unpacked the tin tubes, plastic posts, and curved tops from the skinny box that has arrived from Walmart. The directions for the shoe rack appear fairly simple: attach this to that, then that to this, and finally, remove scrambled shoes from the floor of my bedroom closet and set them neatly on the gizmo.  Alas, my assembly looked like a wacky Lego, rather than the structure promised on the carton’s front.

Ramir to the rescue. In less than five minutes, he unscrewed and repositioned all of the parts until it was a replica of the image. Ramir, along with George, Greg, José, and Roberto, who are members of the maintenance crew in my apartment building, have smoothly taken over the helpmate role once performed by my husband, and several men who lived on my block on Dakin St.

Back then, when Tommy and I were in our three-bedroom house, John topped the team who cared for us. Even before my spouse became ill, when he was able to still mow the grass or shovel the walk, John would beat him to it.

“Honey,” I’d say. “I hear a snow blower outside. Do you think it’s John?” 

We’d both go to the window, open the drapes, and wave as we saw our neighbor steering through through white mounds on our front walk on his way to our driveway.  While John was the über neighbor,  there were other males who came to our aide. 

“What ever you need, any time of day,” was what Casey said as the ambulance drivers were bringing Tommy up the stairs from our ride from Northwestern Memorial Hospital. Then, Casey placed a yellow post-in in my hands with his cell phone number. 

Joél on Dakin St. asked how he could help after I had hip surgery. “My car needs maintenance,” I told him. “Give me the keys,” he said.

During the 12 days my husband was in hospice, upstairs in the bed with railings on both sides, his long-time buddy, Randy, visited several times a week to rake leaves and de-clutter the downspouts. 

After Tommy died and I sold our house and moved to an apartment building, friends who were experienced renters said, “You won’t have to worry about lawns or snow anymore. And if anything needs fixing, you just call maintenance.”

And I did. At first, my requests were basic: replace a dead light bulb, unclog the bathroom sink’s drain, coax a stubborn ice maker. But the new men in my life have far surpassed those everyday appeals. With care and precision, members of the staff have hung all of the two dozen paintings on the walls of my convertible studio. 

And it was Ramir who was at the door after this request, “I have a Hoover Upright vacuum cleaner, and I can’t figure out how to put it together.”  As I stood nearby, feeling like a dazzled intern watching a surgeon, Ramir studied the carton’s image, and quickly performed the operation. “Let’s test it first,” he said. He plugged in the cord to the wall socket and after the first loud hum, showed me how to steer it. Then, he stood by to be certain I could manage the hefty machine on my own.

“Can I give you something?” I asked him then, and again at the latest shoe rack assembly, for I knew these tasks didn’t really fall under the category of Maintenance. But, this new man in my life waved away my question and was quickly out the door.

When Tommy was well, which was the majority of our 16 years together, he was our family handyman. In the basement of our house he erected a wooden table where he placed all of the tools he had accumulated in his adult life. He mounted a pegboard on the wall that stored nails, screws, hooks, and other tidbits essential to his odd-jobs and carpentry ambitions.

As his health deteriorated, and this aspirations evaporated, I bequeathed the table, tools, and pegboard to good neighbor John. But, I held onto one hammer, one screw driver, and a pair of pliers, believing I’d need them in a future life.

I’ve used each gadget occasionally: to pound the cover  of a stubborn jar of pickles, to open a key ring and add a store’s loyalty card, and to twist off the top of a bottle of nail polish. But thanks to the new men in my life -- who have accepted all of the responsibilities once handled by the guys on Dakin St., and by my own beloved handyman -- that’s all this trio of tools will likely be asked to do.

Thursday, May 16, 2013

Coed Majoring in Phys Ed

I never went away to college. When I graduated from Roosevelt High School, my parents couldn’t afford to send me Downstate to the University of Illinois, or to other places my wealthier classmates chose. So every day, I took the CTA to Roosevelt University where I was granted a partial scholarship. And following classes, I again rode the trains to a part-time job.

As I look back, this was hardly an idyllic undergrad campus experience. But, because my best friend, Ruth, also went to Roosevelt, and because I received a great education, I didn’t feel deprived.

Now, in this new chapter of my rookie widow life, a bit of imaginary campus life seems to be emerging. Often, I feel as if I were a freshman, away from home for the first time, majoring in Physical Education.

I was explaining my theory to Ruth, who is still my best friend after all these years. “You’re right on one count,” she said. “We both went straight from our parents’ homes to our marriages. There was no period of time when we were on our own.”

One of my daughters, who was also given the hypothesis, disagreed: “What about the time you and Dad separated?” she said. “You lived alone then.”

“Somehow, this is different,” I said. “You two girls were still in Chicago and stopped in often enough that I felt as if I were living the same life. Just without him.”

I’ve been musing about this sensation of a freshman year and believe some of it may be related to home furnishings, some to the youthful population in my apartment building, and some to my more active life.

Because my apartment is a convertible studio, with a bedroom behind a sliding door, the queen-sized bed that Tommy and I shared  was deemed too large. So, I dropped down a size to a “full,” better to suit my fictitious dorm room.

Also, I took with only a few pieces from our former three-bedroom home and got them painted in bright colors. This update has made it appear that the kitchen table, coffee table, and hall table are not only brand new, but purchased at kicky Ikea. Surely, that’s where true coeds find their furniture.

I revealed the other half of my conjecture -- my chosen major -- to another daughter. “So, Phys Ed,” she said. There was a pause while she likely recalled her mother’s previous attempts to learn how to swim, my start-and-stop gym memberships, as well as my lack of coordination.

“Should I expect to see you in a league?” she asked. “Uniform with logo on the back?”

I smiled and accepted the skepticism, which I knew was trimmed in pride. Both daughters are my biggest supporters in my recent sad-to-swift journey from married-to-widow, from home owner-to-apartment dweller.

“No leagues,” I said. “But, I work out every day. I take Yoga three days a week, have a personal trainer one day, do the workout on my own two more days, take swim lessons and paddle by myself whenever I can fit it in.”

“Good for you, Momma,” she said. I’d like to think that a vision of an active parent striving to keep fit, who has elected to live in a tower of mostly thirty-somethings rather than with peers in in assisted living, delights my kid. 

In my imaginative college life, I’ve also decided that I live on a campus. You see, the health club where I work out is attached to my apartment building, so I have the sense that I’m trekking the quadrangle. 

Here’s another aspect of university life that supports my theme: class assignments and homework. In the real world, I’m still operating my public relations business and my sidelines of coaching writing and using Apple mobile devices.

While my Phys. Ed workouts are a priority, there’s a danger of neglecting revenue-producing work, sort of like flunking out. And, this time around, without an empathetic university to grant me funds, hitting the books is essential. But, without frat parties, sorority mixers, or other late night revelries, I should be able to pass my freshman year.

Of course, if I wanted  to bring my make-believe world closer to a true collegiate experience, there should be a roommate sharing my space. While a corporeal buddy would be ideal, this coed will settle for framed photographs of a beloved husband. Like me, my Tommy missed the campus experience. Let’s try this together, sweetheart:

We're loyal to you, Illinois,
We're "Orange and Blue," Illinois,
 We'll back you to stand 'gainst the best in the land,
 For we know you have sand, Illinois,  Rah! Rah!

Monday, March 4, 2013

Un-couching The Potato

After I hit the "Submit" button, I felt as proud as if I had just earned a degree. My accomplishment certainly can’t compare to matriculating, but for me, promising -- via a paid-for ticket -- to go out to an evening event, was nearly as daunting.

It all started with a demand from one of my longtime friends. "Now that Tommy is gone,” she said, “you've got to get off your couch and go out in the evenings." She is a persuasive woman, someone who easily wins any debate.

She pressed on, "I remember you used to love going to plays."

"I have to go to bed at eight so I can get up at four and start my work,” I said. I assumed she’d applaud my entrepreneurial spirit, but instead she countered:

"That's nuts."  I have heard that diagnosis from many others.

I once could use my husband as an excuse for staying in. There was a time when he and I were frequent theatre-goers, and there were many evenings when we joined friends for dinner. But as his brain degeneration worsened, and his aphasia left him unable to speak one word, we discarded those pastimes.

"It just wasn't fun anymore," I told her. She’s a very empathetic person, so I thought this tack might get her to go easy on me. "Tommy couldn't join in on conversations at a restaurant,” I continued, “and at the theatre, I'd worry if he went to the men's room on his own. He refused to let me stand outside the door, but I was afraid he wouldn't be able to find his way back to our seats."

My poignant story did slow her down, but it was temporary. "So, now?" she asked.

"I love T.V.," I admitted. "For me, a perfect evening is bringing a dinner tray to the couch and watching one of the shows I taped the night before." I felt my heart lighten as I conjured the scene. Bliss for me; evidently a horror story for my friend, who was wrinkling her nose as if my laptop meal had gone sour.

"That's awful," she said.

I ignored her disdain and for a moment, continued my meditation. Except for the dinner tray, that was how my husband and I spent our evenings. We stretched out on couches that faced each other. But instead of chatting across the coffee table, our focus was on a procedural drama, such as the entire "Law and Order" franchise that was playing out on the screen.

Amazingly, for two people so different from each other, we enjoyed the very same television shows and routine. There were no disputes coming from our dual couches; it was simply a scroll through "My Recordings" to decide on the one we'd watch for the evening.

"That's why our marriage has lasted as long as it has," I often told friends. We were nearing our 15-year anniversary, which I considered a record for the second-time around and for such a mismatched pair. I'd further explain: "Tommy's Gentile; I'm Jewish. He has no kids; I've got two and grandchildren. I have a master's degree; Tommy never went to college. He lived on a budget; I was married to a doctor. But, we both love staying home and watching the same television programs."

In fact, our passion for our couch potato lifestyle was so strong that we came to begrudge invitations for evenings out. "We're hosting Passover dinner," another very longtime friend had said, "but I know you don't want to come." Sweetly, the invitations continued despite her anticipating my response.

But now, with Tommy gone, without my head wrapped around his caregiving, my nights on the couch are starting to fray. I'm getting lonely. I admit that evenings out to theatre, to dinner, to the event I just ordered tickets for, are becoming more appealing.

I'm even managing my dislike for nighttime driving by using taxicabs. And, I'm adjusting to getting gussied up as the sky darkens. To prevent head- and eye-droops as the evening wears on, I take catnaps. Slowly, one event at a time, one limb at a time, I’m peeling this small and stubborn body off the couch.  

Tuesday, February 19, 2013

The Sign

The sign is actually quite simple, just the realtor’s name, his company, and contact information. It stands to the right of the stairs that lead up to the front porch. Because it's a windy day, the sign sways, but the post that anchors it, remains steady.

The sign must’ve been planted when I was elsewhere in the house because this is my first sighting. From my window view, I see that the message is printed on both sides. Good idea, I think, that way passersby coming from either direction, can learn that our house is up for sale.

I say "our” house because I can't yet bring myself to omit my husband from its ownership. And perhaps that's one reason I hesitated in allowing the sign to be erected in the first place.

"Can we put it on the market without a sign?" I had asked my realtor.

"If that's what you want, that's fine," he said.

"I'm just not ready."

"No problem."

I'm not sure why I balked. After all, my neighbors have followed my life and Tommy's illness with steady concern and support, and are all aware of my decision. "We hate to see you go," they had said, "but we understand."

Nearly 13 years ago, when we first bought the house, these neighbors came to our door bearing a flowering plant and a plate of cookies. "Welcome," they said, and then handed me a flyer for a block party that was scheduled later that month.

One by one, I met nearly everyone on our street. I’ve been witness to pregnant bellies and adoptions that brought forth children whom I’ve watched sprout taller every year. And, I’ve seen puppies grow from wild frolickers to snoozers on front lawns.

The block parties continue as annual events, and each year spread further up and down the closed-off street as new young families discover us. "We've blossomed into a small-town square, straight out of Norman Rockwell," is how I described our last party.

Perhaps Tommy’s and my entry into the neighborhood all those years ago was made easier because of our own Golden Retriever, for this is a dog-addicted neighborhood. There’s a park at the end of our block that attracts early risers who meet daily to release their pets to delirious chasing of tennis balls, and one another.

After our dog died in June at the age of 14, I'd still return to the park at the morning light and imagine Buddy in the mix. He was just 1-1/2 years old when we chose him from a shelter. For a few weeks after he was gone, I'd return to the park with my jacket pockets still filled with treats, a tennis ball, and a plastic bag. I'd sit on a bench and chat with friends while watching the dogs play. Eventually, though, I deposited a half dozen balls on one neighbor's porch, and boxes of treats on another's.

As I think of it, perhaps I didn't want to put up the for-sale sign because I thought it would break Tommy's heart, even if he might be too remote to notice. "Feet first," he'd say whenever anyone would ask if we'd ever leave.

Lately though, I believe my husband would approve of my decision to sell and move to a rental apartment. He knows I'm useless with a hammer, am terrified of a power mower, and need more than a stepladder to change a lightbulb. These were his tasks, and I’m certain he’d rather I keep my hands off them.

Because of the way he cared for me during our 16 years together (2 as sweethearts, and 14 as wedded), I don't think Tommy's keen on me living here alone, despite the safety of our neighborhood. In fact, as I do the nightly security check: lock windows and doors, turn on outside lights, and draw the drapes, I can sense him in my shadow, double-checking my work.

I realize that in the morning, when I do the reverse of the nighttime check, when I open the drapes, turn off the porch lights, and unlock the front door to retrieve the newspapers, the first thing I'll spot is the sign. Perhaps I should brace myself for the expected pang.

But it could be, that after a night’s sleep, I’ll see it in a different light -- not as a prompt of old memories, but as guidepost to my new chapter.
 

Thursday, February 7, 2013

Without A Trace

"It might be best if you stash some of the family pictures," the realtor says. "People coming through want a clean landscape; no traces of the current owner."

I realize he's trying to be gentle for he's aware of the circumstances that led to my putting my house on the market.  I'm not offended by his suggestion. We’re a team with the same goal: sell my three-bedroom house, which has become too large and too lonely without my husband. If successful, then move me into a rental apartment that will better suit my budget and solo life.

"I guess I could de-clutter," I say. My gaze travels around the rooms on the first floor. The dining room table holds a framed photograph of Tommy on his Schwinn. I love that picture because it's testimony to his amazing spirit. Despite my husband's challenges, he'd hop on his bike every afternoon, while I'd stand watch at the window and pace until he returned.

I hit pause on my reverie and promised the realtor, "I'll handle it before the showing."

"Take your time," he says, and puts a hand on my shoulder that tells me he sympathizes.

When he leaves, I move to our upright, its top decorated with photos of two different Golden Retrievers, beloved pets who gave us 9 and 14 years of sweet companionship. Where to hide these temporarily? The piano bench! I open the lid and place the three pictures on the Rogers and Hart Songbook.

The second floor is the real challenge, for it's not only Tommy and the dogs hogging every surface and shelf, but daughters, grandchildren, and my brother and his family. All smiling back at me with memories of our younger, innocent, hopeful selves.

I slow my task because each photo must be studied. Their backstories flash in front of me, like the crawl at the bottom of a TV screen. Instead of sports scores or weather advisories, the line that enters my vision reminds me: This one must've been taken 16 years ago because my oldest grandson is just a baby here. My daughters and their partners, Tommy and I, and Sasha, the first of our dogs, are sprawled across our queen-sized bed.

Everyone in the scene gleams. The joy of a new grandchild and the feeling of family togetherness are palpable. Now that I think of it, I believe some of Tommy's happiness in that photo was due to this new family he has won. With no children of his own, my second husband relished his sudden role as stepfather to my vibrant daughters.

Without a piano bench to use as storage, I find a carton to hold the second floor's larger collection. I lift a photo from a book shelf. It displays my husband and me and my brother and sister-law. We are at some party that I can't recall, but it must've been special because the men are in sport jackets and the women in fancy clothing. "Is anything wrong with Tommy?" is the line that this photo generates. "He seems to be repeating things."

"It's not Alzheimer's," I tell my brother. "He forgot to take his thyroid meds for several weeks and he's a bit muddled." Wishful thinking, I realize now. Not Alzheimer's, but the first evidence of a brain degeneration as miserable as the better-known illness.

There are wedding photos everywhere. Tommy and I posed as newlyweds; smiles nearly as bright as the Las Vegas lights in the hotel we've picked for our venue. Here's a crowd photo of my daughters, their partners, my grandson now a toddler, my brother and sister-in-law, and friends who could fly in for our January 13, 1998 wedding. I gather all of these testaments to our happy union, then open a dresser drawer to tuck them in.

On the nightstand next to our bed, I not only have another framed photo of my husband, but also his watch, wallet, and wedding band. I've set them here as a makeshift alter -- my last stop for a goodnight chat before heading under the covers. One-by-one, I place  each totem in a drawer. But once strangers traverse my clean landscape, I'll  retrieve and return his beloved possessions to their rightful spot.

When I am finished de-cluttering, and my home no longer bares traces of my old life, I head out the door. The realtor is due soon with a prospect. I hope they have children, a dog, and, please, a camera.
 

Tuesday, January 29, 2013

Growing Stronger

"Please don't load them too heavy," I said to the Trader Joe cashier as he unfolded and stretched out a few brown grocery bags. "I have to carry them into the house myself."

Kevin turned to me, first with a questioning look and then one of recognition. He had learned through the store's grapevine that my husband died in November.

"No problem," he said, then pulled out several more bags to spread my purchases among the collection building on the counter.

Like all of the other members of the TJ staff, Kevin had witnessed the ritual that Tommy and I performed every Sunday morning at 8 a.m. until my husband's hospitalization. It started like this: After we parked our car in the lot that was still not filled at that early hour, Tommy would head for the shopping cart corral and extract two. He'd hand me mine first, and then we'd meet up inside at the floral display,

"Your assignment if you wish to accept it," I'd joke, "is soy milk, bananas, strawberries, and orange juice."

With that directive, Tommy would push his cart towards the bakery goods.

Sticky pecan buns were not on the list of needs I had recorded on the reporter's notebook I keep on a kitchen counter. Neither was apple pie. But my husband regularly added one or the other pastry to his cart. These were his freebies and I think he enjoyed this bit of independence from his wife's rigid list.

Tommy would then depart, picking up the items I had requested. After a few minutes, he’d return to find me and get his next assignment.

"Good," I'd say as I scanned his cart and checked off milk, ban, straw, O.J. from my list. Then I’d instruct him, "pickles, marinated mushrooms, stuffed green olives, apple sauce."

Tommy and I would repeat this back-and-forth until we finished my list. With his mission completed, he’d head off, leaving me with his cart and bounty. Solo, I'd push mine and drag his behind me, like a mother with one cooperative and one unruly child.

I’d head to a checkout counter manned by a familiar face. If it was a regular like Kevin, I wouldn't have to give this spiel: "Consider these two carts as one. Pretend there is no bar between them. One order. One bill."

I'd feel it helpful to add a back story: "We used to shop with one cart," I'd say. "But, then I'd find myself with my arms overloaded as I'd catch up with my husband. This is easier."

"Got it," the neophyte would claim, but then total up the first cart, slap his forehead, and say, “Oh, sorry, force of habit." So you can see why Kevin and his like were so appreciated.

As purchases from the twin carts were being bagged, I'd start to seek a visual. Tommy had a habit, once he relinquished his cart, to wander the aisles. Another bit of independence, I'm sure.

If I was in a bratty mood, I'd wheel out the condensed and paid-for cart to the Honda -- my version of revenge for his disappearance. "Send him out when he shows up," I'd tell Kevin. "Will do," he'd say. I never knew if Kevin had picked up on Tommy's condition, or if he figured he was just another impatient spouse who had better things to do than wait for grocery bags to be filled.

I wouldn't pull that shtick very often as I didn't want to cause Tommy one bit of anxiety. As for him, he never seemed perturbed by my leave taking. He'd soon catch up with me at the opened trunk and watch a bit as I'd struggle with the first shopping bag. Then he'd grin and nudge me aside to complete the loading.

On the day I was doing my solitary shopping - not a Sunday because it was still too painful to visit the store on our day - Kevin hoisted one of the filled bags in the air, then handed it to me. "What do you think?" he asked.

I lifted it up, testing its weight to decide if I'd be able to first transfer from cart to trunk, then trunk up the back stairs to the kitchen,

"I think I can manage," I said.

At home, the extra bags and the absence of a muscled helper, required several trips from car to kitchen. "Cardio," I told myself. "Building biceps. Growing stronger."

Then, I imagined Tommy in his celestial abode, grinning. Not from my struggle, though, but from pride. "Knew you could do it," he’d say, as he raised his hands to give me two thumbs up.

Tuesday, January 1, 2013

The Handyman

“We’ll have to scrape off the old paint,” the handyman says. “Won’t look good if we just put another layer on top of the old.”

He looks up at me, likely wishing there was a man of the house who would better understand his diagnosis. Doubt if he appreciates this woman who seems to be counting dollars as he talks.

Yes, I'm counting costs, but my faraway look is also linked to memories on this porch. I see me sitting on the top stair, my golden retriever, Buddy, tucked tight next to me. I see Tommy rounding the corner on his Schwinn. The dog barks in joy; I smile with relief that my impaired husband has made it home safely.

Once the handyman has finished inspecting the front porch, I'll lead him to the back deck, which will need new staining. Nothing to strip here, just another layer to bring the wood back to a healthy shine. Again, images will interfere with his chatter. The glass-topped table is now stored in the basement along with the wrapped umbrella. Four chairs with rattan arms peeling off and rain-stained seat cushions are the table's companions.

When Tommy was healthy, we'd host pre-Labor day parties year after year. Some 60 friends and neighbors would claim spots at the outdoor table, or at the green bench in the yard, or scatter themselves in the kitchen. "No, no more parties," I told guests who were wondering at the absence of e-mail invitations this year. They didn't ask for explanations, already privy to Tommy's aphasia that made him unable to join in on conversations and enjoy social situations.

The basement floor is the last area that needs the handyman's review and estimate. The space still holds a treadmill, but the workman's bench my husband used in the early days of our 12 years here, is cleared of all tools. Two golf bags have already been donated to Goodwill, and I will gift the scores of balls Tommy couldn't resist buying.

Against all advice typically doled out to recent widows-- such as don’t make a major move for a year following a husband’s death – I have already decided to sell our house. There are
rational reasons: a three-bedroom home is too large for just me. There is no longer a dog, so the fenced-in backyard and proximity to the park, are not necessities. There is no gardener husband, so the vegetable plots that were only tended by him will lie fallow. The upkeep is more than my limited budget can handle.

While some may think my reasoning is limp, and I am rushing into things, in truth, this decision has been simmering for several years. “When Tommy can’t take care of the house any longer,” I’d tell loved ones who worried over the burden. “Then, we’ll consider a move to an apartment.”

At times, I’d pose the idea to my husband: “Wouldn’t it be lovely to be in a high rise overlooking the lake with someone else handling upkeep?”

“Feet first,” Tommy would reply, confirming his desire to never move from this house.

So, without his vote, I’m eyeing one-bedroom rentals in downtown Chicago, with maintenance included in the rent. My new home should have a doorman, a balcony, a washer and drier in the unit, be near public transportation so I can turn in my costly leased car, and be walking distance to attractions. A health club in the building and an outdoor pool would be lovely, too.

While the handyman does his part in prepping the house for a Spring sale. I will go through closets, shelves and files and decide what must be transported to a very downsized apartment. I will continue donating Tommy’s clothing and sporting equipment to Goodwill. On Wednesday mornings, before the trash trucks arrive, I’ll dump clutter and old files into the bins at the curb.

When the realtor brings prospective buyers to my house, I will leave the premises. While I'd be happy to see a young family as the new owners, with children occupying the bedrooms, with a dog who frolics in the yard, with a handyman husband who'll fill the workbench with new tools, I'd rather not be in earshot.

Moving forward, independent, that's where my thoughts must travel now: New year, new chapter, with Tommy’s spirit as my dear roommate. I’m sure he’ll adjust.









Tuesday, December 18, 2012

The Opposite of Caregiving

The Peace Lily (Spathiphyllum) features dark green foliage and a large white flower. They are strictly indoor plants that take medium light, bloom year-round and are very forgiving. That is, until the unlucky houseplant met me.

Sarah,” I led off in my email, “will you take Tommy’s plants?” My neighbor had admired them on a previous visit. I watched, guilt shadowing my face, as she lifted a watering can from its dusty shelf and approached the Peace Lily.

Tenderly, as I had seen my husband do, she watered the plant along with all of the others he had cared for over the years. The drooping leaves appeared to heave a sigh of relief, soon brightening and popping up as the water I had thoughtlessly denied them quenched their thirst. 

My gift to my neighbor of the half dozen houseplants was part of my effort to divest of anything that required my care and attention. I had spent a good part of my second marriage taking care of my husband -- willingly and faithfully -- and now, with his passing, I wanted to be free of responsibility.

It’s not only houseplants I’m rejecting, but also pets. “No, no dogs,” I’d reply to those who suggested a furry companion to assuage my typical widow loneliness.  “A cat?” they’d pose. “Much easier to care for. No walking in the winter. Just a litter box.”

I’d turn down that idea, too. “Expensive,” I’d respond. "Can't afford it." We had spent a fortune over the years in vet bills for Sasha, who died at 9 and Buddy at 14. While we loved our Golden Retrievers like children, the financial cost is, in truth, one factor, but also the responsibility, and more importantly, the pain of their eventual loss.

And, there'd be the memories a new pet would bring. “Like clockwork,” a neighbor reminded me. “You, Tommy, and Buddy, walking around the park at six in the morning. Then, there'd be Tommy shouting at Buddy, ‘no, no,no’ as the dog headed for a mud puddle. And before Tommy could change Buddy’s direction, there’d be your dog plopping like a hippo.”

I laughed as I recalled that repeated scene. No, no more dogs. No more images of my husband racing to catch up with our Golden. No more reminders of my glee as I watched Tommy fetch Buddy from his makeshift pond. “I’ll hose him off in the basement,” he’d say, more amused than angry.

“A roommate, that’s what you need,” suggested my daughters. “You’ve got two spare bedrooms in your big house, you’ve admitted to loneliness in the afternoons, get a roommate for company and extra cash.”

It was true the two spaces I had reserved for my out-of-town daughters and their families have gone mostly unused, expect for brief visits twice a year. I thought about their idea. Thought about the money that could help me pay bills. Thought about the young student, actor, or even an airline pilot who would welcome our proximity to O’Hare. I even started composing an ad for that last possibility.

But then, I got depressed. I had images of me lowering the volume on my TV so I wouldn’t disturb my housemates. My 4 a.m. MSNBC show that accompanies my early rising might have to be curtailed out of concern for the stranger needing his or her sleep down the hall.

I saw myself opening doors to find clothing tossed on the floor, unmade beds, which paying renters would have every right to leave. I imagined me morphing into Mother, waving away their objections and insisting they eat a little something before their class, performance, or flight.

“Go, leave the laundry,” I heard myself saying. “You’ll be late. I’ll take care of it.”

Then, despite my best intentions, I couldn’t doubt the vision of me lying awake, listening for a late-night key in the door, just as I once did with my flesh-and-blood.

“No, no borders,” I told them.

“But your loneliness,” my daughters reminded me.

“There’s nothing wrong with being temporarily lonely,” I said. “Right now, I really don’t want to talk to anyone. I want to sit on the couch and eat my meals while watching TV.”

Of course, I know a time will come when lack of responsibility moves from respite to emptiness, when I will long for a beating heart nearby. Until then, I will talk to myself and my departed husband. For a smidgen of care taking, I’ll tend to the mixed bouquet on my kitchen table. Trim stems, change water, add crystal. I think I can handle that.